- American Association for the Study of Liver Disease
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www.aasld.org
AASLD is an organization of scientists and healthcare professionals committed to preventing and curing liver disease.
- American Liver Foundation
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www.liverfoundation.org/about
The American Liver Foundation (ALF) promotes liver health and disease prevention. It also provides research, education and advocacy for those affected by liver-related diseases, including hepatitis. Here is the Illinois chapter.
- Biliary Atresia Research Consortium (BARC)
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www.barcnetwork.org
The Biliary Atresia Research Consortium (BARC) is a group of doctors, nurses, research coordinators and medical facilities in the U.S. working together to study infants with cholestasis (blockage of bile flow from the liver). Poor bile flow and buildup of substances in the liver can cause serious illness and lead to liver injury.
- Children and Clinical Studies
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www.nhlbi.nih.gov/childrenandclinicalstudies/index.php
Developed by the National Institutes of Health, the website provides a better understanding of clinical research and its role in improving children’s health.
- Children's Organ Transplant Association
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www.cota.org/customsites/cota/index.asp
The Children's Organ Transplant Association helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support.
- Cholestatic Liver Disease Consortium (CLiC)
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rarediseasesnetwork.epi.usf.edu/clic/index.htm
The Cholestatic Liver Disease Consortium (CLiC) is a collaborative team of doctors, nurses, research coordinators, and patient support organizations throughout the U.S. and London, UK, working together to improve the lives of children and families dealing with rare cholestatic liver diseases.
- Directory of Prescription Drug Assistance Programs
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www.helpingpatients.org
The Partnership for Prescription Assistance brings together America's pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private programs.
- Gift of Hope
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www.giftofhope.org
Gift of Hope Organ & Tissue Donor Network is federally designated not-for-profit agency that coordinates organ and tissue donation and supports families of donors in the northern three-quarters of Illinois and northwest Indiana.
- Make-A-Wish Foundation of Illinois
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www.wishes.org
Make-A-Wish grants wishes to children who suffer from life-threatening illness.
- National Transplant Assistance Fund
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www.transplantfund.org
The mission of NTAF is to help transplant and catastrophic injury patients afford critical but uninsured medically related expenses through fundraising guidance, patient support and resources, as well as financial assistance.
- The American Transplant Association
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www.americantransplant.org
The American Transplant Association is a non-profit organization dedicated to providing patient-oriented education and services to those affected by and interested in organ transplantation.
- United Network for Organ Sharing (UNOS)
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www.unos.org
The United Network for Organ Sharing (UNOS) is a non-profit, scientific and educational organization that administers the nation’s only organ procurement and transplantation network (OPTN), established by the US Congress in 1984.