Roles of the multidisciplinary team
The CAMP approach integrates expertise of specialists from throughout the hospital to develop uniquely comprehensive evaluation and treatment techniques. The family and the referring physicians also play a critical role in the successful management of each child.
Cardiology: Performs tilt-table testing, heart rate variability assessment, mapping of cardiac rhythm abnormalities, echocardiograms, 72-hour Holter recordings, EKGs, and cardiac stress tests.
Cardiovascular-thoracic surgery: Implants diaphragm pacers, ideally thoracoscopically, and implants cardiac pacemakers.
Endocrinology: Comprehensively assesses all hormones produced and regulated by the child's hypothalamus and pituitary.
Ear, nose and throat: Determines the child's optimal tracheostomy tube size through bronchoscopy.
Gastroenterology, hepatology and nutrition; General surgery: Gastroenterology assesses intestinal motility for the Hirschsprung disease patients and those that are non-Hirschsprung but severely constipated, while general surgery performs surgical revision of the intestines as needed.
Genetics, birth defects and metabolism: Offers genetic counseling for CCHS, ROHHAD, and families affected by sudden infant death syndrome (SIDS).
Medical imaging (radiology): All of our radiologists are board certified with subspecialty training in pediatric radiology, interventional radiology and/or neuroradiology.
Ophthalmology: Does comprehensive testing pertinent to the ANS.
Neurocognitive professionals: Does annual diagnostic testing to determine progress between hospitalizations and identify areas for targeted intervention.
Neurology: Interprets MRIs and CTs, as well as EEGs, and helps develop tools to assess pain perception.
Plastic and reconstructive surgery: Helps with children whose faces have been deformed from prolonged use of mask ventilation since early infancy.
Psychiatry (child and adolescent): Assesses perception of anxiety as a measure of ANSD and develops a better understanding of the flat affect in ROHHAD patients.
Pulmonary medicine: Performs pulmonary function testing.
Urology: Assesses for problems related to the child's bladder and delayed bladder emptying.
Family: The family is an integral part of the CAMP team, maintaining contact during the months between CAMP evaluations by sharing flow sheets indicating the home management.
Referring physicians: Referring physicians are integral to the CAMP team, allowing us the privilege of sharing in the management of their patients.
CAMP: In addition to the comprehensive physiologic testing in varying levels of concentration, activity, and exercise, ventilatory responses to hypoxemia (decreased oxygen), hyperoxia (increased oxygen) and hypercarbia (elevated carbon dioxide) are performed. Autonomic testing and pupillometry are also included in the CAMP clinical testing.